Hannah Deacon, mother of Alfie Dingley and a tireless campaigner for access to medical cannabis in the UK, joins ECH.
ECH is the group of companies behind the launch of the UK’s first medical cannabis clinic, with the goal to improve patient access to medical cannabis.
Seven-year-old Alfie Dingley suffered up to 500 life-threatening seizures a month and was admitted to hospital 48 times a year because of his severe epilepsy.
Alfie was the first person among the 500,000 people in the UK with epilepsy to receive a permanent medical cannabis license, obtained by Professor Mike Barnes, ECH’s Chief Medical Officer.
Hannah Deacon commented: “I’m delighted to join ECH to continue to fight the battle to overcome barriers to medical cannabis in the UK, support better education and ensure patients right across the country get the access they need and the help they deserve.”
Stephen Murphy, ECH Group Managing Director, added: “The legalisation of prescription cannabis has given people with chronic illnesses hope, and it is ECH’s mission to fulfil that. We are thrilled that Hannah Deacon, who understands what it means to fight for the care her son deserves, has come onboard to share her insight and counsel on what more we can do to make sure that other patients – like Alfie – are no longer denied the treatment they need to survive.”